Online (Zoom)

Following on from AAVantgarde Bio’s presentation at our Information Day, we are delighted to welcome back Dr Claudio Spero to our last Community Zoom of the year. He will be…

It’s our last parent’s session of the year and we will have Sian our QTVI there to answer any education-related queries. We know how hectic this time of year can…

The festive season is upon us and to celebrate we will be holding a Christmas-themed hour for our next children and young people’s Zoom session. This will include some festive…

Register Now! https://us02web.zoom.us/meeting/register/MeABUY-aTHW90Qg8-0ydMg We have an exciting programme of presentations covering a range of topics. Here is the agenda for the day: 14:00-14:10: Introductions and order of the day 14:10-14:40:…

Vicky, Rob and Marina will discuss travel tips for people with VI. Register in advance for this meeting https://us02web.zoom.us/meeting/register/6CWtuK47STOWmkXTptrNGQ After registering, you will receive a confirmation email containing information about joining the meeting.

We are delighted to have Dr. Alekseev, a Principal Investigator for the Belite Bio DRAGON II study at Duke University Hospital (Duke Eye Center USA) joining this session to share recent research updates on Stargardt's disease and providing an update on the DRAGON II Study clinical trials. In the second part, we will have our…

Informal chat to share experiences (joined by QTVI Sian Muggridge) . Register in advance for this meeting https://us02web.zoom.us/meeting/register/a_DVjGY8QkOP_QI2fANg1w After registering, you will receive a confirmation email containing information about joining the meeting.

Living with Stargardt's: Sharing tips and experiences and show and tell your favourite apps/tech. Register in advance for this meeting https://us02web.zoom.us/meeting/register/TAUnTBl0RJCZoOUSKOp0bw After registering, you will receive a confirmation email containing information about joining the meeting.

Jonathon Vine, Senior Director of Clinical Operations at SpliceBio will provide an update on their Stargardt's clinical trials with an opportunity for questions and answers afterwards. Register in advance for this meeting https://us02web.zoom.us/meeting/register/N86MUBXtRtifMOTxUpucVw After registering, you will receive a confirmation email containing information about joining the meeting.

Emmy award winning actress Ellen Gould will be joining us to give an update on her upcoming film, Seeing Stars, inspired by stories of five women with Stargardt’s. Register in advance for this meeting https://us02web.zoom.us/meeting/register/WL0HXSPoRSqXTwxet4VOPQ After registering, you will receive a confirmation email containing information about joining the meeting.