Online (Zoom)

Jonathon Vine, Senior Director of Clinical Operations at SpliceBio will provide an update on their Stargardt's clinical trials with an opportunity for questions and answers afterwards. Register in advance for…

Emmy award winning actress Ellen Gould will be joining us to give an update on her upcoming film, Seeing Stars, inspired by stories of five women with Stargardt’s. Register in…

A chance for parents of children and young people with Stargardt's to get together and share ideas and discussion with other parents in the community. This month we will have…

A chance for young people with Stargardt's to get together, share ideas and have discussions with other young people in the community. This month we will be talking about how…