Events
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Stargardt’s Connected Community Zoom Session (May 2026)
Online (Zoom)Join us on Saturday 16th May where we will be joined by our wonderful trustee Robert McCann brining us all the top tips and advice on how to use assistive tech to enhance our daily lives living with Stargardt’s. Register in advance for this meeting https://us02web.zoom.us/meeting/register/SXWwRc5PSTClKJRNge3sYw After registering, you will receive a confirmation email containing…
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Stargardt’s Connected Young People’s Zoom Session (June 2026)
Online (Zoom)We will be joined by the fantastic Zakia, a wellbeing and mindfulness practitioner, to guide us through some mental health and wellbeing activities. Register in advance for this meeting https://us02web.zoom.us/meeting/register/iLUQXbAbRz6VTpwCeXf03g…
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Stargardt’s Connected Parents and Carers Zoom Session (June 2026)
Online (Zoom)Join us on Monday 1st June for our next Parent and Carer Zoom session where we will be joined by Sian Muggridge, Qualified Teacher of Visually Impaired, to discuss educational transitions, from primary to secondary, post-16 and beyond. Register in advance for this meeting https://us02web.zoom.us/meeting/register/Tei8patPSF-a56ijTW9rFA After registering, you will receive a confirmation email containing information…
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Stargardt’s Connected Young People’s Zoom Session (July 2026)
Online (Zoom)Top tips for travelling and sharing experiences and advice for making the best day out! Register in advance for this meeting https://us02web.zoom.us/meeting/register/AddM8kHTR0GAi8uPEwg99A After registering, you will receive a confirmation email containing information about joining the meeting.
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Stargardt’s Connected Community Zoom Session (July 2026)
Online (Zoom)We will be joined by Dr Louise Terry from Cardiff University to talk about an exciting research study exploring Stargardt's disease and how it affects the retina. Dr Terry will explain the aims of the study, what participation involves, and why research like this is so important in improving our understanding of inherited eye diseases.…
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Picnic in the Park (2026)
Hyde Park Parade Ground, London, United KingdomJoin us in Hyde Park London for a day of fun in the sun and sharing experiences with others in the Stargardt's Community. Please let us know you will be…
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Stargardt’s Connected Young People’s Zoom Session (September 2026)
Online (Zoom)Join us on Monday 21st September from 5:30pm to 6:30pm for a session focused on helping you feel confident going back to school, starting college or university and speaking up…
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Stargardt’s Connected Parents and Carers Zoom Session (September 2026)
Online (Zoom)Join us on Monday 21st September at 7:00pm for a session focused on educational transitions for children and young people with Stargardt’s disease, supporting parents and carers as they help…
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Stargardt’s Connected Community Zoom Session (September 2026)
Online (Zoom)Join us on Saturday 26th September from 12:00pm to 1:30pm for a Zoom session exploring home technology and how you can adapt your home to better suit your needs when…
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Fitness Session with Shreya Mehta (03/10/26)
Online (Zoom)Join us for our upcoming Zoom exercise sessions with Shreya Mehta, a qualified personal trainer who is also living with Stargardt’s. These beginner-friendly sessions are designed to help you move,…