Children and Young People’s Zoom Session (June)

Online (Zoom)

Living with Stargardt's: Sharing tips and experiences and show and tell your favourite apps/tech. Register in advance for this meeting https://us02web.zoom.us/meeting/register/TAUnTBl0RJCZoOUSKOp0bw After registering, you will receive a confirmation email containing information about joining the meeting.

Parents’ Zoom Session (June)

Online (Zoom)

Informal chat to share experiences (joined by QTVI Sian Muggridge) . Register in advance for this meeting https://us02web.zoom.us/meeting/register/a_DVjGY8QkOP_QI2fANg1w After registering, you will receive a confirmation email containing information about joining the meeting.

Community Zoom Session (July)

Online (Zoom)

We are delighted to have Dr. Alekseev, a Principal Investigator for the Belite Bio DRAGON II study at Duke University Hospital (Duke Eye Center USA) joining this session to share recent research updates on Stargardt's disease and providing an update on the DRAGON II Study clinical trials. In the second part, we will have our…

Picnic in the Park (2025)

Hyde Park Parade Ground, London, United Kingdom

Come join us for our annual Summer Picnic in the Park. Bring your own picnic and have the opportunity to informally network, and meet others with Stargardt's and their families.…

White Water Adventure Day with Stargardt’s Connected

Lee Valley White Water Centre Station Road, Waltham Cross, United Kingdom

Join VICTA and Stargardt’s Connected at Lee Valley White Water Centre in September for an activity day making waves. Taking advantage of Lee Valley’s Olympic facilities, we will begin the…

Stargardt’s Connected Community Zoom Session (October)

Online (Zoom)

Vicky, Rob and Marina will discuss travel tips for people with VI. Register in advance for this meeting https://us02web.zoom.us/meeting/register/6CWtuK47STOWmkXTptrNGQ After registering, you will receive a confirmation email containing information about…