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Stargardt’s Connected achieves charity status

We are absolutely thrilled to announce that Stargardt’s Connected is now a Registered Charity – the first Stargardt’s charity in the UK! We are extremely proud to have achieved this…

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Sarah Stiffin and the London Marathon

We are extremely grateful and excited for Sarah Stiffin who is running the London Marathon for Stargardt’s Connected. Please support Sarah and the work we do by donating here: https://www.justgiving.com/crowdfunding/sarah-stiffin…

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Professor Michel Michaelides

Medical Advisor for Stargardt’s Connected Michel Michaelides BSc MB BS MD(Res) FRCOphth FACS is a Consultant Ophthalmologist at Moorfields Eye Hospital in the departments of Medical Retina, Genetics and Paediatric…

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Odette’s story

I first came to London in the mid-1980s from France to work as an au pair, which allowed me to spend my evenings taking part in dance classes at the…

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Art Therapy Session

“Inspiring, relaxing, fun and calming” were some of the words used to describe the Stargardt’s Connected Art Therapy session at the London Art Therapy Centre. Thank you to Elaine and…

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Bhavna’s story

In September 2015, my son Ethan was diagnosed with Stargardt’s disease when he was just seven years old; a condition we had never heard of. Being told that he was…

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