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Belite Bio Trial update

The Dragon Study Phase 3, Multicenter, Randomized, Double-Masked, Placebo-Controlled Study to Evaluate the Safety and Efficacy of Tinlarebant in the Treatment of Stargardt Disease in Adolescent Subjects. The closing date…

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Global survey of potential participant perspectives on ocular gene therapy

A research team from Melbourne, Australia, has developed a new questionnaire on gene therapy for inherited retinal disease, known as the Attitudes to Gene Therapy for the Eye (AGT-Eye) survey.…

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Retina UK Professional and Annual Conference

Retina UK are holding their Professionals and Annual Conference at the University of Westminster Marylebone Campus, London on Friday 23rd June and Saturday 24th June respectively. These events are face-to-face…

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Points of Light award

We are delighted to announce that the founder of Stargardt’s Connected, Bhavna Tailor, has been awarded the Prime Minister’s Points of Light Award in recognition for setting up Stargardt’s Connected…

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Professor Frans P. M. Cremers

Professor of Ophthalmogenetics in the Department of Human Genetics in the Radboudumc in Nijmegen, The Netherlands Professor Cremers obtained his doctorate in Nijmegen in 1991, entitled ‘Positional cloning of a…

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Marina’s story

I’m Marina Leite. I have Stargardt Disease, and I’m from Brazil. I have a degree in History, an MBA in Marketing and Digital Communication, and I’ve just completed an MPA…

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