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You are here: Home > Toolkit > Parent / Carer Support

Toolkit: Parent / Carer Support

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News from our Faceboook page

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Stargardt's Connected
2 days ago
Stargardt's Connected

Join us for our next Community Zoom session on 31st May 12-1:30pm (GMT).

We are delighted to have Jonathan Vine, Senior Director of Clinical Operations at SpliceBio, provide an update on their Stargardt’s clinical trials with an opportunity for questions and answers after.

Here is the link to the registration:
us02web.zoom.us/meeting/register/N86MUBXtRtifMOTxUpucVw

PD: a poster with a yellow background and black writing announcing our upcoming Community Zoom session on the 31st May at 12pm (GMT).

#StargardtsConnected #Stargardts #CommunityZoomSession #Zoom #OnlineSessions #StargardtsTrials #ClinicalTrials #SpliceBio
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Join us for our next Community Zoom session on 31st May 12-1:30pm (GMT). 

We are delighted to have Jonathan Vine, Senior Director of Clinical Operations at SpliceBio, provide an update on their Stargardt’s clinical trials with an opportunity for questions and answers after.

Here is the link to the registration: 
https://us02web.zoom.us/meeting/register/N86MUBXtRtifMOTxUpucVw
 
PD: a poster with a yellow background and black writing announcing our upcoming Community Zoom session on the 31st May at 12pm (GMT). 
 
#StargardtsConnected #Stargardts #CommunityZoomSession #Zoom #OnlineSessions #StargardtsTrials #ClinicalTrials #SpliceBio
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0 CommentsComment on Facebook

Stargardt's Connected
3 days ago
Stargardt's Connected

A huge congratulations to Liv and her amazing friends who took on the Great Birmingham Half Marathon Run this Sunday in support of Stargardt’s Connected!

Liv, who has Stargardt’s herself, took on the challenge alongside an incredible group of friends showing such strength, determination, and teamwork every step of the way. We’re so proud of them all for raising awareness and vital funds for our community.

Together, they’ve already raised an incredible £3,600 so far for Stargardt’s Connected, helping us continue our work supporting people with Stargardt’s disease and their families.

There’s still time to show your support. If you’d like to donate, you can do so here: www.justgiving.com/page/imogen-kielstra-1734997415151?utm_medium=FR&utm_source=CL

Let’s keep the momentum going and celebrate this incredible achievement!

PD1: A photo of Team Stargardt including Liv wearing a yellow Stargardt’s Connected t-shirt and all her friends wearing white t-shirts holding her up. They are all laughing.

PD2: A photo of Team Stargardt including Liv wearing a yellow Stargardt’s Connected t-shirt and all her friends wearing white t-shirts all kneeling together with big smiles.

#StargardtsConnected #GreatBirminghamRun #FundraisingHeroes #TeamStargardts
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A huge congratulations to Liv and her amazing friends who took on the Great Birmingham Half Marathon Run this Sunday in support of Stargardt’s Connected! 

Liv, who has Stargardt’s herself, took on the challenge alongside an incredible group of friends showing such strength, determination, and teamwork every step of the way. We’re so proud of them all for raising awareness and vital funds for our community.

Together, they’ve already raised an incredible £3,600 so far for Stargardt’s Connected, helping us continue our work supporting people with Stargardt’s disease and their families. 

There’s still time to show your support. If you’d like to donate, you can do so here: https://www.justgiving.com/page/imogen-kielstra-1734997415151?utm_medium=FR&utm_source=CL

Let’s keep the momentum going and celebrate this incredible achievement! 

PD1: A photo of Team Stargardt including Liv wearing a yellow Stargardt’s Connected t-shirt and all her friends wearing white t-shirts holding her up. They are all laughing. 

PD2: A photo of Team Stargardt including Liv wearing a yellow Stargardt’s Connected t-shirt and all her friends wearing white t-shirts all kneeling together with big smiles. 

#StargardtsConnected #GreatBirminghamRun #FundraisingHeroes #TeamStargardtsImage attachment
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Stargardt's Connected
1 week ago
Stargardt's Connected

Join us on Wednesday 14th May at 7pm (GMT) for our next Parent’s Zoom session.

Sian Muggridge (Qualified Teacher of Visually Impaired) will join us to lead on a session about educational transitions from Primary to Secondary and Post-16 and beyond.

We will also be joined by our young person Alex, who will be on-hand to answer any questions about supporting your child as they prepare to transition to university life.

Here is the link to register:
us02web.zoom.us/meeting/register/NSRy_M82QzSKVWNxYzHSJw

PD: a yellow poster with black writing announcing the next parents Zoom session on the 14th May at 7pm GMT.

#StargardtsConnected #ParentsZoom #ZoomSessions #Stargardts #EducationalTransitions #LifeTransitions #QTVI
... See MoreSee Less

Join us on Wednesday 14th May at 7pm (GMT) for our next Parent’s Zoom session. 

Sian Muggridge (Qualified Teacher of Visually Impaired) will join us to lead on a session about educational transitions from Primary to Secondary and Post-16 and beyond. 

We will also be joined by our young person Alex, who will be on-hand to  answer any questions about supporting your child as they prepare to transition to university life. 

Here is the link to register: 
https://us02web.zoom.us/meeting/register/NSRy_M82QzSKVWNxYzHSJw

PD: a yellow poster with black writing announcing the next parents Zoom session on the 14th May at 7pm GMT. 

#StargardtsConnected #ParentsZoom #ZoomSessions #Stargardts #EducationalTransitions #LifeTransitions #QTVI
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  • likes 5
  • Shares: 5
  • Comments: 2

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