Skip to content
Stargardt's Connected Logo
DONATE
  • About
    • Our Stargardt’s Journey
    • FAQ
    • Genetic information
      • Diagnosis
      • Management
      • Genetics and Inheritance
      • Genetic Services and Testing
    • Team
    • Useful links
  • Community Register
  • Education
    • Toolkit
  • Support
    • Get in touch
    • Practical support
    • Emotional support
  • Research
    • Latest Research
    • Gene Therapy
    • Stem Cell Therapy
    • Drug Therapy
    • Vitamin A and Stargardt’s Disease
  • Fundraising
    • Shop
    • Chelsea Flower Show
    • Bake Sale Toolkit
  • News
    • Events
    • Event Video Sessions
    • Stories
  • Contact
You are here: Home > Toolkit > Parent / Carer Support

Toolkit: Parent / Carer Support

blue star
  • Toolkit Overview
  • Physical and Sensory Needs
  • Cognition and Learning
    • Exams
    • Exam Revision Resources
    • Exam Scripts
  • Social and Emotional
  • Communication and Interaction
  • Transitions
  • A Personal Account

To be completed.

To be completed

In their own words

xx

xx

xx

News from our Faceboook page

Comments Box SVG iconsUsed for the like, share, comment, and reaction icons
Author Avatar
Stargardt's Connected
5 hours ago

As we reach the end of an incredible year, we’re taking a moment to reflect on everything we’ve shared together 💛

From fun-filled meet-ups and inspiring conversations to new friendships and growing confidence, this year has been full of connection, energy, and community spirit.

In this round-up, we’re looking back at some of our favourite moments, celebrating how far we’ve come, and saying a huge thank you for your support to everyone who’s been part of Stargardt’s Connected this year. Here’s to the memories we’ve made, and all that’s still to come ✨

PD: a video of different photos from Stargardt’s Connected activities and memories throughout the year.

#StargardtsConnected #Community #NewYearsEve #Charity #HappyNewYear #2025RoundUp
... See MoreSee Less

Play
View on Facebook
· Share
Share on Facebook Share on Twitter Share on Linked In Share by Email
View Comments likes love 7 Shares: 0 Comments: 1

1 CommentsComment on Facebook

Author Avatar
Stargardt's Connected
1 week ago

Wishing you all a very Merry Christmas 🎄✨

We’ve had an amazing 2025 filled with making meaningful connections, raising awareness of Stargardt’s, some exciting research news, and so much more. Thank you to all of our incredible supporters for your continued support this year, we’re so grateful and we couldn’t do it without you. We hope you and your families have a wonderful Christmas, and a very happy New Year! We can’t wait to make more memories and connections in 2026!

PD1: all of the Stargardt’s Connected trustees taking a selfie together wearing red Santa hats with Marina and Rob included via Zoom in the back.

#StargardtsConnected #MerryChristmas #CharityChristmas #Stargardts
... See MoreSee Less

Wishing you all a ve
View on Facebook
· Share
Share on Facebook Share on Twitter Share on Linked In Share by Email
View Comments likes love 41 Shares: 0 Comments: 7

7 CommentsComment on Facebook

Author Avatar
Stargardt's Connected
2 weeks ago

Last Saturday, we had a charity stand @Tesco Cheshunt Brookfield where we helped to raise funds and awareness of Stargardt’s and Stargardt’s Connected.

We raised £163.34 and even made new connections with the Stargardt’s community, showing that a rare disease is not always as rare as we think.

We know how important it is continuously raise awareness of the charity and Stargardt’s and want to say a huge thank you to @tesco for hosting us, and to our amazing volunteers who gave up their time to support us throughout the day.

It’s opportunities like these that allow us to keep growing and continue supporting our incredible Stargardt’s Connected community. Thank you to everyone who stopped by, donated, or shared kind words, it truly means the world to us!

PD1: A photo of the Stargardt’s Connected stand at Tesco with Bhavna, Elise and our wonderful volunteers standing behind the table wearing their Santa hats.

#StargardtsConnected #Stargardts #Tesco #Fundraising #HertfordshireCharity #RaisingAwareness
... See MoreSee Less

Last Saturday, we ha
View on Facebook
· Share
Share on Facebook Share on Twitter Share on Linked In Share by Email
View Comments likes love 26 Shares: 1 Comments: 1

1 CommentsComment on Facebook

Load more

Sign up to our mailing list

Proud members of

UK eye genetic group 400
Herts Chamber Member Logo 400
genetic alliance 400
eurordis 400

Join us on social media

With thanks to

jeans for genes 400
fight-for-sight 400
powell family foundation 400

Legal

  • Accessibility
  • Terms & Conditions
  • Privacy
  • Cookie Policy
  • GDPR

© 2025 Stargardt's Connected (Registered Charity Number: 1183570) • Website by Perfectly Digital Ltd

×