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You are here: Home > Toolkit > Parent / Carer Support

Toolkit: Parent / Carer Support

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A Personal Account

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Stargardt's Connected

5 hours ago

Today we’re celebrating International Sunglasses Day 🕶️

Snap a selfie in your favourite sunglasses
Tag us @stargardtsconnected
Use the hashtag #ShadesForStargardts

Did you know that research has shown that UV light can speed up the progression of Stargardt’s which is why it is recommended for people with Stargardt’s that they wear sunglasses all year round even on an overcast day.

People with Stargardt’s can also be photophobic which means they are sensitive to light therefore they have to wear sunglasses to protect them from light sensitivity.

So, let’s shine a light on eye health and celebrate our favourite shades.

Together, we can spread awareness and help others see the importance of eye protection 💫

PD: a yellow poster reading Happy International Sunglasses day. Around the writing is different coloured sunglasses.

#StargardtsConnected
#ShadesForStargardts #InternationalSunglassesDay #StargardtsSupport ... See MoreSee Less

Today we’re celebrating International Sunglasses Day 🕶️

Snap a selfie in your favourite sunglasses
Tag us @stargardtsconnected
Use the hashtag #ShadesForStargardts

Did you know that research has shown that UV light can speed up the progression of Stargardt’s which is why it is recommended for people with Stargardt’s that they wear sunglasses all year round even on an overcast day.

People with Stargardt’s can also be photophobic which means they are sensitive to light therefore they have to wear sunglasses to protect them from light sensitivity.

So, let’s shine a light on eye health and celebrate our favourite shades.

Together, we can spread awareness and help others see the importance of eye protection 💫

PD: a yellow poster reading Happy International Sunglasses day. Around the writing is different coloured sunglasses.

#StargardtsConnected
#ShadesForStargardts #InternationalSunglassesDay #StargardtsSupport

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Stargardt's Connected

4 days ago

Bhavna was invited to present at the UK Eye Genetic Group (UK-EGG) annual conference at the University of Oxford last week. There she was asked to present on the Stargardt’s Community Register and Stargardt’s Connected.

It was an excellent day and really inspiring as well as exciting to hear about groundbreaking eye research from world leading experts in the field.

It was also good to be able to have the opportunity to raise awareness of some of the work that Stargardt’s Connected does to Medical professionals. Stargardt’s Connected is proud to be a member of UK-EGG.

PD1: Bhavna is stood next to Professor Sam De Silva (left) and Professor Susie Downes (to her right)

PD2: Bhavna is standing with Professor Samantha De Silva and Dr Nancy Aychoua

PD3: A photo of all the charity logos for those presenting at the conference including @retina_uk @fightforsightuk @macularsociety

#StargardtsConnected
#UniversityOfOxford #StAnnesCollege #OphthalmologyConference ... See MoreSee Less

Bhavna was invited to present at the UK Eye Genetic Group (UK-EGG) annual conference at the University of Oxford last week. There she was asked to present on the Stargardt’s Community Register and Stargardt’s Connected.

It was an excellent day and really inspiring as well as exciting to hear about groundbreaking eye research from world leading experts in the field.

It was also good to be able to have the opportunity to raise awareness of some of the work that Stargardt’s Connected does to Medical professionals. Stargardt’s Connected is proud to be a member of UK-EGG.

PD1: Bhavna is stood next to Professor Sam De Silva (left) and Professor Susie Downes (to her right)

PD2: Bhavna is standing with Professor Samantha De Silva and Dr Nancy Aychoua

PD3: A photo of all the charity logos for those presenting at the conference including @retina_uk @fightforsightuk @macularsociety

#StargardtsConnected
#UniversityOfOxford #StAnnesCollege #OphthalmologyConference

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Stargardt's Connected

1 week ago

Join us for a day of fun, friendship, and fresh air at our annual Picnic in the Park in Hyde Park! We’re bringing people together from all over the country for a relaxed, joy-filled afternoon, pack your picnic blanket, bring your snacks and enjoy the great company. We can’t wait to see you there!

Where: Parade Ground, Hyde Park, London, W2, 2UH
When: Sunday 10th August
Time: 12-4pm (BST)
Nearest Tube: Marble Arch 5 minutes walk to the park

There will be sighted guides at Marble Arch Station and our volunteers in bright yellow charity T-Shirts to help guide if needed.

Let us know if you are attending by emailing [email protected].

PD: a poster announcing the next annual Picnic in the Park on the 10th August, 12:00-16:00 (BST). At the top of the poster is a photo from last year’s picnic with lots of people smiling in the sun.

#StargardtsConnected #PicnicInThePark #HydePark #Community #Stargardts #CommunityOutings #Networking ... See MoreSee Less

Join us for a day of fun, friendship, and fresh air at our annual Picnic in the Park in Hyde Park! We’re bringing people together from all over the country for a relaxed, joy-filled afternoon, pack your picnic blanket, bring your snacks and enjoy the great company. We can’t wait to see you there!

Where: Parade Ground, Hyde Park, London, W2, 2UH
When: Sunday 10th August
Time: 12-4pm (BST)
Nearest Tube: Marble Arch 5 minutes walk to the park

There will be sighted guides at Marble Arch Station and our volunteers in bright yellow charity T-Shirts to help guide if needed.

Let us know if you are attending by emailing events@stargardtsconnected.org.uk.

PD: a poster announcing the next annual Picnic in the Park on the 10th August, 12:00-16:00 (BST). At the top of the poster is a photo from last year’s picnic with lots of people smiling in the sun.

#StargardtsConnected #PicnicInThePark #HydePark #Community #Stargardts #CommunityOutings #Networking

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