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You are here: Home > Toolkit > Parent / Carer Support

Toolkit: Parent / Carer Support

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News from our Faceboook page

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Stargardt's Connected
39 minutes ago

Come and join us for our last Community Zoom session of the year on the 6th December 12-1:30pm GMT (UK Time).

AAantgarde Bio, a gene therapy company developing pioneering treatments for inherited retinal dystrophies (IRDs), are delighted to present an overview of their clinical trials in Stargardt Disease.

Following on from AAVantgarde Bio’s presentation at our Information Day, we are delighted to welcome back Dr Claudio Spero to our next Community Zoom session. He will be speaking in more detail about the Stargardt’s studies CELESTE and STELLA and there will be opportunities for a Q&A after.

In the second part, we will have our usual breakout sessions where you’ll have the opportunity to speak to others in smaller groups and share your experiences.

Here is the link to register: us02web.zoom.us/meeting/register/TKgRTYsiTASvzV9KGcp7ig

PD1: a yellow poster announcing the next community Zoom session on the 6th December at 12pm GMT.

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Stargardt's Connected
1 day ago

Come and join our last parent’s Zoom session of the year on 1st December 7:00pm to 8:00pm GMT (UK Time).

We will have Sian our QTVI there to answer any education-related queries. We know how hectic this time of year can be so we are delighted to have Zakia, a wellbeing practitioner, to bring some calm to the busyness and guide you through some breathing and meditation exercises.

It is also a great opportunity to have a chat and share experiences with other parents of children and young people with Stargardt’s.

Here is the link to register: us02web.zoom.us/meeting/register/3xVcTIcQRnC2kAN_pPIbvw

PD1: a yellow poster announcing the last parent’s Zoom session of the year on the 1st December at 7pm GMT.

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Stargardt's Connected
2 days ago

Come and join us for our last Children and Young People’s Zoom session of 2025 on the 1st December at 5:30pm GMT (UK time).

The festive season is upon us and to celebrate we will be holding a Christmas-themed hour for our next children and young people’s Zoom session. This will include some festive games and cookie decorating. Don’t forget to wear your festive jumpers.

Here is the link to register: us02web.zoom.us/meeting/register/jAiu-ZhzQZ-rN68KqyhUWw

PD: a yellow poster with black text announcing the next young people’s Zoom session for December 1st at 5:30pm GMT.

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