Skip to content
Stargardt's Connected Logo
DONATE
Row dot-cluster Shape Decorative svg added to top
  • About
    • Our Stargardt’s Journey
    • FAQ
    • Genetic information
      • Diagnosis
      • Management
      • Genetics and Inheritance
      • Genetic Services and Testing
    • Team
    • Useful links
  • Community Register
  • Education
    • Toolkit
  • Support
    • Get in touch
    • Practical support
    • Emotional support
  • Research
    • Latest Research
    • Gene Therapy
    • Stem Cell Therapy
    • Drug Therapy
    • Vitamin A and Stargardt’s Disease
  • Fundraising
    • Shop
    • Chelsea Flower Show
    • Bake Sale Toolkit
  • News
    • Events
    • Event Video Sessions
    • Stories
  • Contact
You are here: Home > Toolkit > Parent / Carer Support

Toolkit: Parent / Carer Support

blue star
  • Toolkit Overview
  • Physical and Sensory Needs
  • Cognition and Learning
    • Exams
    • Exam Revision Resources
    • Exam Scripts
  • Social and Emotional
  • Communication and Interaction
  • Transitions
  • A Personal Account

To be completed.

To be completed

In their own words

xx

xx

xx

News from our Faceboook page

Comments Box SVG iconsUsed for the like, share, comment, and reaction icons
Stargardt's Connected
11 hours ago

Looking for a fun, accessible way to get moving and feel more confident to improve your fitness? Join us this Saturday at 10am (BST - UK Time) for a FREE online fitness session for all abilities with Shreya Mehta @mehtafit_pt , a qualified personal trainer who also lives with Stargardt’s.

These sessions are designed to help you:
* Get moving at your own pace
* Build strength and confidence
* Improve your fitness in a supportive environment
* Challenge yourself as you feel comfortable
* Improve mental health and wellbeing

Whether you’re new to exercise or looking to build a regular routine, everyone is welcome! Family members are welcome too.

Join from the comfort of your own home via Zoom and take part at a pace that works for you.

Ready to get involved? Join us this Saturday 17th October at 10am (BST - UK time). Here’s the link to register for Saturday’s session: us02web.zoom.us/meeting/register/J0dQU4R4S6SSm6WqMYiDCQ

Here’s a list of future scheduled sessions:

* Saturday 31st October
* Saturday 14th November
* Saturday 5th December

For information about 1-to-1 online or in-person personal training with Shreya, contact her at
[email protected] or visit her Instagram page @mehtafit_pt.

Thank you Shreya for arranging these sessions. Let’s get moving, support one another and make fitness accessible to everyone! 💪

#Stargardts #StargardtsConnected #InclusiveFitness #AccessibleFitness #ZoomFitness FitnessForEveryone StayActive CommunityWellbeing
...

Play
View on Facebook (opens in a new tab)
· Share
Share on Facebook (opens in a new tab) Share on Twitter (opens in a new tab) Share on LinkedIn (opens in a new tab) Share by Email (opens in a new tab)
View Comments Like reaction Reactions: 2 Shares: 0 Comments: 0

0 CommentsComment on Facebook

Stargardt's Connected
6 days ago

Bhavna attended the Community Alliance Broxbourne and East Herts (CABEH) Autumn Conference where she was invited to speak about Stargardt’s Connected and how CABEH has supported her and the charity on its journey.

The theme of the conference was “Navigating change, driving impact together” and some of the main key takeaways were the importance of community, connections and collaboration.

Bhavna is really grateful for their support, training and networking opportunities to help guide and grow the charity and other organisations.

Community Alliance Broxbourne & East Herts

PD1: Bhavna is at the front of the room presenting.
PD2: Bhavna in a group photo with the CABEH team

#StargardtsConnected
#StargardtsCommunity #Stargardts
...

Image attachment
Image attachment
View on Facebook (opens in a new tab)
· Share
Share on Facebook (opens in a new tab) Share on Twitter (opens in a new tab) Share on LinkedIn (opens in a new tab) Share by Email (opens in a new tab)
View Comments Like reaction Love reaction Reactions: 19 Shares: 0 Comments: 0

0 CommentsComment on Facebook

Stargardt's Connected
3 weeks ago

Join us on Saturday 26th September from 12:00pm to 1:30pm for a Zoom session exploring home technology and how you can adapt your home to better suit your needs when living with Stargardt’s disease. We will be joined by Robert McCann, Stargardt’s Connected Trustee and Equipment Centre Coordinator at Sheffield Royal Society for the Blind, who will share practical advice, personal experiences, and useful tips to help make everyday life at home easier and more accessible. There will also be lots of opportunity to share your home tech adaptations techniques and ideas with the group.

In the second part, we will have our usual breakout sessions where you’ll have the opportunity to speak to others in smaller groups, share your experiences and connect with others in the community.

Here is the link to register: us02web.zoom.us/meeting/register/-qRXHk2QQvSodoHA5NwQJQ

PD: a yellow poster announcing the next Community Zoom session on the 26th September at 12pm (BST - UK Time).

#StargardtsConnected #Stargardts #CommunityZoom #ZoomSession
...

Join us on Saturday
View on Facebook (opens in a new tab)
· Share
Share on Facebook (opens in a new tab) Share on Twitter (opens in a new tab) Share on LinkedIn (opens in a new tab) Share by Email (opens in a new tab)
View Comments Like reaction Reactions: 2 Shares: 4 Comments: 0

0 CommentsComment on Facebook

Sign up to our mailing list

Proud members of

UK eye genetic group 400
Herts Chamber Member Logo 400
genetic alliance 400
eurordis 400

Join us on social media

With thanks to

jeans for genes 400
powell-family-foundation-400 trim
fight-for-sight 400
coop 400

Legal

  • Accessibility
  • Terms & Conditions
  • Privacy
  • Cookie Policy
  • GDPR

© 2026 Stargardt's Connected (Registered Charity Number: 1183570)

×