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Toolkit: Parent / Carer Support

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Stargardt's Connected

A big thank you to our wonderful younger volunteers, who did a brilliant job of helping out at our charity stand in @coopuk last Saturday, raising awareness of Stargardt’s and helping to sell raffle tickets. A big thank you also to @coopuk for donating the very generous hampers. We raised £168.58 and lots of awareness!

Did you know that we have been selected by Co-op as one of the local causes to support. Anyone in the UK can select Stargardt’s Connected as their chosen cause if you are a member. Here’s the link to register and please do share this with family and friends. membership.coop.co.uk/causes/99534

PD1: Three of our lovely young volunteers standing beside the Stargardt’s Connected stand banner and table with leaflets and hampers on top.

PD2: The three young volunteers standing outside of a Co-op store that hosted us for the day, donated the hampers and supported our fundraising efforts.

#StargardtsConnected #CoOpLocalCommunityFund #Stargardt
#CoOp #RaisingAwareness ... See MoreSee Less

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Stargardt's Connected

Following the huge success of the Stargardt’s Connected Conference 2024, we are thrilled to announce that we will be holding our third conference on Saturday 21st November 2026 at 1 America Square, London, EC3N 2LB. This will be a hybrid event. We will have a fantastic day with a packed agenda and more details on this will follow soon.

But for now, please SAVE THE DATE!

PD1: a yellow poster announcing the next Stargardt’s Connected Conference on the 21st November 2026 at 1 America Square, EC3N 2LB.

#StargardtsConnected #Stargardts #Conference #StargardtsConnectedConference ... See MoreSee Less

Following the huge s

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Stargardt's Connected

Come and join us for our next Parents and Carers Zoom session on Monday 13th April at 7pm (BST - UK Time).

This will be an informative session on the EHCP process with QTVI Sian Muggridge leading the session. As well as discussing the ECHP process, we will be discussing the White Paper and looking at the new SEND reforms and how this may impact your child. As usual we will have opportunities for Q and A with Sian, and a chance to chat and share experiences together.

Here is the link to register: us02web.zoom.us/meeting/register/AwKt1jvpQxeUzAikxEwtsg

PD1: a yellow poster announcing our next Parents and Carers Zoom Session on Monday 13th April at 7pm (BST - UK Time).

#stargardtsconnected #stargardts #zoomsessions #EHCP ... See MoreSee Less

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Proud members of

UK eye genetic group 400

genetic alliance 400

eurordis 400

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With thanks to

jeans for genes 400

powell-family-foundation-400 trim

fight-for-sight 400

coop 400

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