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You are here:Home > Toolkit > Self Help and Independence

Toolkit: Self Help and Independence

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Stargardt's Connected
23 hours ago

We had a fantastic time at this year’s Goff’s Oak Summer Fayre.

Alongside our charity stall, we were delighted to be part of such a wonderful community event again and have the opportunity to raise awareness of Stargardt’s disease and the work we do.

A huge thank you to the Goff’s Oak Community Association for choosing us as one of three charities supported by the event’s fundraising efforts. Our fundraising game, Blind Pong (our take on beer pong), was super popular again. Players wore simulation glasses designed to replicate the effects of Stargardt’s before attempting to throw a ball into a cup to win a sweet treat. It was a fun way to help people understand some of the challenges faced by those living with sight loss.

The Fayre was packed with family-friendly entertainment, fantastic local businesses, charities, food vendors, and live music, creating a brilliant atmosphere throughout the day.

Thank you to everyone who stopped by our stall, played the game, made a donation, or took the time to learn more about our charity. Your support helps us continue our work to give support, raise awareness and seek a cure.

PD1: a photo of Rosie and Mayor of Broxbourne Patsy Spears standing in front of the Stargardt’s Connected charity stall.

PD2: a photo of Rosie (left) and Elise (right) standing by the Stargardt’s Connected charity stall wearing their yellow Stargardt’s Connected t-shirts.

#StargardtsConnected #GoffsOakSummerFayre #BlindPongChallenge #Summer #Community
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Stargardt's Connected
1 week ago

Come and join us on Saturday 20th June for our next Community Zoom session about sports and physical fitness.

We will be joined by two of our fantastic and sporty trustees Toby and Marina to talk about their experiences participating in sport with Stargardt’s. After this, the fantastic Shreya Mehta, a qualified personal trainer who also Stargardt’s, will guide us through a physical fitness session.

In the second part, we will have our usual breakout sessions where you’ll have the opportunity to speak to others in smaller groups and share your experiences.

Here is the link to register: us02web.zoom.us/meeting/register/xJ40fEHLRC6cc6HsfLW8rw

PD1: a yellow poster announcing the next Community Zoom session on Saturday 20th June at 12:00pm BST (UK time).

#StargardtsConnected #Stargardts #Community #Zoom
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Come and join us on
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Stargardt's Connected
2 weeks ago

A huge congratulations and heartfelt thank you to the incredible Davis family Alan, Rachael and Ruby, who have successfully completed the Three Peaks Challenge in support of Stargardts Connected.

Over one unforgettable adventure, they conquered Ben Nevis, Scafell Pike and Snowdon, facing unexpected May snowfall, fighter jets soaring overhead and a breathtaking sunrise, all while raising awareness of Stargardt’s disease and the daily realities faced by those living with it.

This challenge was especially meaningful as their daughter Ruby, aged 13, lives with Stargardt’s disease. Despite the tough climbs, aching legs and sore knees, they pushed on with determination, passion and purpose, and lots of energy to spare for Ruby.

Together, they have raised an incredible £6,153 for Stargardts Connected. Every pound raised will help support our mission to raise awareness, give support and seek a cure.

We are beyond grateful for your commitment, courage and generosity. You have inspired our community and helped shine a light on Stargardt’s and our wonderful community.

Please join us in celebrating this amazing family and their outstanding achievement! ❤️

For more information about the Davis family fundraiser please see their JustGiving page here: www.justgiving.com/page/three-peaks-stargardts

PD1: a poster created by the Davis family that reads ‘We did it’ with three pictures (from each of the three peaks).

#ThreePeaksChallenge #StargardtsConnected #StargardtsDisease #FundraisingHeroes #RareDiseaseAwareness
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A huge congratulatio
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