We are so pleased to share our Stargardt’s Star for August, John Gill. ⭐
We asked John to tell us a little bit about his experiences, and here’s what he had to say:
“Ten years ago, I was registered SSI (blind) after a diagnosis of Stargardt’s was confirmed by genetic testing at Moorfields Eye Hospital. Throughout my sixties, I experienced problems with my sight; I stopped driving, lost my ability to read and started to trip and fall regularly. However, because of the relatively slow progress of the disease, I was able to adapt to my changing circumstances. I am grateful for that and for the late onset of my condition.
I am blessed with a wide circle of friends and thankful for their unfailing help and support. Before retirement, I spent four happy decades working in the arts and I am currently on the Board of my local orchestra, Brighton Philharmonic. I am also proud to have been appointed MBE for services to arts and education in 2022.
There are so many assistive technologies available now and in development. I think it important at any age to be aware of every opportunity, to learn new skills, and to embrace change. I ask for help when I need it, maintain my independence as best I can, and regularly go to performances, theatre and music with friends, keeping the crowds at bay with my long white stick.
Being able, for the first time, to meet other people living with Stargardt’s at the 2024 Stargardt’s Connected Conference was life-changing for me. I look forward to the next meeting in the autumn with eager anticipation.”
Here is the link to register for our upcoming conference: stargardtsconnected.org.uk/conference-registration/
John was also one of the winners of last year’s Calendar Competition with a photo of the Guggenheim Museum Bilbao (swipe left to see his winning photo). If you would like to enter this year’s competition, here is the link: stargardtsconnected.org.uk/calendar-entries/
John, your resilience, independence and enthusiasm for life are truly inspiring. ⭐
PD1: a photo of John smiling wearing a white shirt.
PD2: John’s winning photo of the Guggenheim Museum Bilbao
#StargardtsStar #Stargardts #StargardtsConnected
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