Skip to content

Our fundraising calendar is now available. Get your copy here.

Stargardt's Connected Logo
DONATE
  • About
    • Our Stargardt’s Journey
    • FAQ
    • Genetic information
      • Diagnosis
      • Management
      • Genetics and Inheritance
      • Genetic Services and Testing
    • Team
    • Useful links
  • Community Register
  • Education
    • Toolkit
  • Support
    • Get in touch
    • Practical support
    • Emotional support
  • Research
    • Latest Research
    • Gene Therapy
    • Stem Cell Therapy
    • Drug Therapy
    • Vitamin A and Stargardt’s Disease
  • Fundraising
    • Shop
    • Chelsea Flower Show
    • Bake Sale Toolkit
  • News
    • Events
    • Event Video Sessions
    • Stories
  • Contact
You are here: Home > Toolkit > Self Help and Independence

Toolkit: Self Help and Independence

blue star
  • Toolkit Overview
  • Physical and Sensory Needs
  • Cognition and Learning
    • Exams
    • Exam Revision Resources
    • Exam Scripts
  • Social and Emotional
  • Communication and Interaction
  • Transitions
  • A Personal Account

To be completed.

To be completed

In their own words

xx

xx

xx

News from our Faceboook page

Comments Box SVG iconsUsed for the like, share, comment, and reaction icons
Author Avatar
Stargardt's Connected
1 day ago

On Tuesday we had a wonderful Christmas get-together for the London Stargardt’s Connected group, and it was such a lovely evening. Families and people living with Stargardt’s came together to celebrate over an amazing dinner at @diwanabhelpoorihouse in Euston.

We enjoyed delicious food, festive fun, Christmas crackers and lots of laughter. Most importantly, it was a great opportunity to catch up, share experiences and spend time with each other.

It was a fantastic way to welcome the festive season. Thank you to everyone who joined us and made it so special. ✨

PD: Everyone who attended the dinner sat around the table wearing santa hats and festive glasses.

#StargardtsConnected #Stargardts #ChristmasDinner #ChristmasDo ... See MoreSee Less

On Tuesday we had a
View on Facebook
· Share
Share on Facebook Share on Twitter Share on Linked In Share by Email
View Comments likes love 12 Shares: 0 Comments: 0

0 CommentsComment on Facebook

Author Avatar
Stargardt's Connected
1 week ago

Come and join us for our last Community Zoom session of the year on the 6th December 12-1:30pm GMT (UK Time).

AAantgarde Bio, a gene therapy company developing pioneering treatments for inherited retinal dystrophies (IRDs), are delighted to present an overview of their clinical trials in Stargardt Disease.

Following on from AAVantgarde Bio’s presentation at our Information Day, we are delighted to welcome back Dr Claudio Spero to our next Community Zoom session. He will be speaking in more detail about the Stargardt’s studies CELESTE and STELLA and there will be opportunities for a Q&A after.

In the second part, we will have our usual breakout sessions where you’ll have the opportunity to speak to others in smaller groups and share your experiences.

Here is the link to register: us02web.zoom.us/meeting/register/TKgRTYsiTASvzV9KGcp7ig

PD1: a yellow poster announcing the next community Zoom session on the 6th December at 12pm GMT.

#StargardtsConnected #Stargardts #Community #CommunitySupport ... See MoreSee Less

Come and join us for
View on Facebook
· Share
Share on Facebook Share on Twitter Share on Linked In Share by Email
View Comments likes 2 Shares: 8 Comments: 0

0 CommentsComment on Facebook

Author Avatar
Stargardt's Connected
2 weeks ago

Come and join our last parent’s Zoom session of the year on 1st December 7:00pm to 8:00pm GMT (UK Time).

We will have Sian our QTVI there to answer any education-related queries. We know how hectic this time of year can be so we are delighted to have Zakia, a wellbeing practitioner, to bring some calm to the busyness and guide you through some breathing and meditation exercises.

It is also a great opportunity to have a chat and share experiences with other parents of children and young people with Stargardt’s.

Here is the link to register: us02web.zoom.us/meeting/register/3xVcTIcQRnC2kAN_pPIbvw

PD1: a yellow poster announcing the last parent’s Zoom session of the year on the 1st December at 7pm GMT.

#StargardtsConnected #Stargardts #ZoomSessions #ParentsSupport ... See MoreSee Less

Come and join our la
View on Facebook
· Share
Share on Facebook Share on Twitter Share on Linked In Share by Email
View Comments likes 3 Shares: 5 Comments: 0

0 CommentsComment on Facebook

Load more

Sign up to our mailing list

Proud members of

UK eye genetic group 400
Herts Chamber Member Logo 400
genetic alliance 400
eurordis 400

Join us on social media

With thanks to

jeans for genes 400
fight-for-sight 400
powell family foundation 400

Legal

  • Accessibility
  • Terms & Conditions
  • Privacy
  • Cookie Policy
  • GDPR

© 2025 Stargardt's Connected (Registered Charity Number: 1183570) • Website by Perfectly Digital Ltd

×