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You are here:Home > Toolkit > Self Help and Independence

Toolkit: Self Help and Independence

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Stargardt's Connected
17 hours ago

Join us on Saturday 11th April at 12pm (BST - UK time) for our next Community Zoom session.

For this session, we will be joined by Chantelle O’Hagan from Blind in Business giving an overview of their organisation and the support they provide, as well as information around access to work and adjustments. This will be followed by Chris and Jess, who both have Stargardt’s, where they will discuss their career journeys.

In the second part, we will have our usual breakout sessions where you’ll have the opportunity to speak to others in smaller groups and share your experiences.

Here is the link to register: us02web.zoom.us/meeting/register/5FawSpYqSDWQn6LTezY0rg

PD1: a yellow poster announcing our next Community Zoom Session on Saturday 11th April at 12pm (BST - UK Time).

#StargardtsConnected #Stargardts #CommunitySupport #BlindinBusiness @officialblindinbusiness
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Stargardt's Connected
5 days ago

We’re incredibly grateful to share that our wonderful supporter, India, will be running the Rome Marathon on March 21st to raise funds for Stargardt’s Connected.

India is taking on this challenge in honour of Rose (photographed), who was diagnosed with Stargardt’s disease at just eight years old.

This marathon also marks India’s return to running after maternity leave, a challenge in itself, but she’s determined to cross that finish line with Rose and families like hers in mind every step of the way.

We’re so thankful for your commitment, courage and generosity India and we wish you the very best of luck.

Please do show your support for India’s fundraiser via her JustGiving page. Here is the link:https://www.justgiving.com/page/india-dodgson-1

PD1: a photo of Rose posing in her sunglasses in front of the Louvre museum.

#StargardtsConnected #Stargardts #Marathon #Fundraising
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Stargardt's Connected
1 week ago

We are absolutely thrilled to celebrate International Women’s Day by featuring our March Stargardt’s Star, the incredible Katriona Taylor.

Katriona is jazz singer and an ambassador for Stargardt’s Connected raising awareness and funds by sharing her story through her incredible music. Here is Katriona’s story:

“My journey to becoming a singer hasn’t been the usual one. My first career was as an Intellectual Property solicitor in the City of London. This felt like a great achievement as I had a few more obstacles to overcome than the average person.

I was diagnosed Stargardt’s at the age of seven. I remember the ophthalmologist who broke the news telling me that I would be totally blind by the time I was 21 and that many things in life wouldn’t be possible for me. Fortunately he was wrong on both counts. Yes, I’ve had to be very determined and yes I’ve had to work with speech software which enables me to read. I’ve also had to deal with the assumptions of those around me, both in the education system and working environment, to show them that a visually impaired female is capable of achieving what she sets out to do. I was born into a family whose lives centred around tennis at Wimbledon – my father is
international tennis champion Roger Taylor. Naturally ball sports was not my thing so I had to find my own way in life.

When I write songs I draw from my own experiences, the tune and lyrics usually come to me first running round my head until I finally get them down on paper and put some chords behind them. I also find the immeasurable love I have for my children, a great source of inspiration to me these days. My experiences continue to inspire and fuel my passion for music.”

Katriona also recently raised £2000 for Stargardt’s Connected through the Tennis Writers Dinner.

You can catch Katriona performing all throughout the year and you can book your tickets on her website here: www.katrionataylor.com/live-events/gigs-and-festivals-coming-up/

PD1: a photo of Katriona performing with a microphone. @katrionataylor

#StargardtsConnected #Stargardts #StargardtsStar #JazzSinger
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