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You are here: Home > Toolkit > Self Help and Independence

Toolkit: Self Help and Independence

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Stargardt's Connected
3 days ago

Bhavna attended the Community Alliance Broxbourne and East Herts (CABEH) Autumn Conference where she was invited to speak about Stargardt’s Connected and how CABEH has supported her and the charity on its journey.

The theme of the conference was “Navigating change, driving impact together” and some of the main key takeaways were the importance of community, connections and collaboration.

Bhavna is really grateful for their support, training and networking opportunities to help guide and grow the charity and other organisations.

Community Alliance Broxbourne & East Herts

PD1: Bhavna is at the front of the room presenting.
PD2: Bhavna in a group photo with the CABEH team

#StargardtsConnected
#StargardtsCommunity #Stargardts
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Stargardt's Connected
3 weeks ago

Join us on Saturday 26th September from 12:00pm to 1:30pm for a Zoom session exploring home technology and how you can adapt your home to better suit your needs when living with Stargardt’s disease. We will be joined by Robert McCann, Stargardt’s Connected Trustee and Equipment Centre Coordinator at Sheffield Royal Society for the Blind, who will share practical advice, personal experiences, and useful tips to help make everyday life at home easier and more accessible. There will also be lots of opportunity to share your home tech adaptations techniques and ideas with the group.

In the second part, we will have our usual breakout sessions where you’ll have the opportunity to speak to others in smaller groups, share your experiences and connect with others in the community.

Here is the link to register: us02web.zoom.us/meeting/register/-qRXHk2QQvSodoHA5NwQJQ

PD: a yellow poster announcing the next Community Zoom session on the 26th September at 12pm (BST - UK Time).

#StargardtsConnected #Stargardts #CommunityZoom #ZoomSession
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Join us on Saturday
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Stargardt's Connected
3 weeks ago

Join us on Monday 21st September from 5:30pm to 6:30pm (BST - UK time) for a session focused on helping you feel confident going back to school, starting college or university and speaking up about what you need when living with Stargardt’s disease.

We’ll explore ways to explain your needs, ask for support, and work with teachers to make changes that help you learn and feel included. We’ll also share ideas about classroom adaptations, useful strategies, and how you can feel more confident advocating for yourself at school, college or university. There will be an opportunity to ask questions, share experiences, and learn from others.

Here is the link to register: us02web.zoom.us/meeting/register/AmktHCgFQ0CJ9emta2K1Vg

PD1: a yellow poster announcing our next children and young people’s Zoom session on the 21st September at 5:30-6:30pm (BST - UK time).

#StargardtsConnected #Stargardts #ZoomSessions #SelfAdvocating
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Join us on Monday 21
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