News
Job Vacancy
Our team is growing and we are recruiting! We are looking to recruit a part time Engagement and Recruitment Co-ordinator to join our passionate and dynamic team. To view the…
Living with Stargardt’s — transition from India to the UK
Stargardt’s disease, a rare genetic disorder that causes central vision loss in both eyes has shaped my life with challenges and adaptations. My experiences of living with Stargardt’s disease changed…
Ellen Gould — Seeing Stars
Ellen Gould, an Emmy-Award winning actress with Stargardt’s speaking about her upcoming film, “Seeing Stars” which is about five women with Stargardt’s. Here’s the link where you can find out…
Life of a Student
A significant percentage of disabled people have to deal with hidden or invisible disabilities which makes it super challenging to perform daily activities. An invisible disability, such as Stargardt’s disease…
International Day of Persons with Disabilities
Disability inclusion is an essential part in achieving the Sustainable Development Goals (SDGs). According to WHO, around 1.3 billion people or 16% of the total world’s population experience disability of…
Sindhu’s story
I am Sindhu from India. I was diagnosed with Stargardt’s when I was 18 years old, back in 2020. I had just completed my school and was preparing for undergrad…
