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Marina’s story

I’m Marina Leite. I have Stargardt Disease, and I’m from Brazil. I have a degree in History, an MBA in Marketing and Digital Communication, and I’ve just completed an MPA…

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Brian Morris

It is with great sadness that we announce the death of our oldest Stargardt’s Connected member, Brian Morris who died earlier this year at the age of 92. He was…

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Running the London Marathon

Thank you so much Greg George for running the 2021 London Marathon on October 3rd to raise funds for Stargardt’s Connected. We are the first and only UK solely Stargardt’s…

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Paul’s story

I’m Paul Appleyard and I am a part time blogger with Stargardt’s Disease who loves to encourage others to aim high and chase their dreams — especially visually impaired people. I…

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Katriona’s story

When I was seven years old at school the teachers noticed that I wasn’t reading the board easily and sent me off to have some eye tests. Nothing obvious showed…

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Rob in Lockdown

Rob McCann, one of our Stargardt’s Connected Trustees, needed to find something to occupy himself at the start of lockdown. What started out feeling like an abundance of free time…

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