Toolkit

Stargardt's is an inherited retinal condition causing progressive central vision loss.

In the education environment, children and young people with Stargardt's Disease will need additional support and adaptations to help meet their needs. This section of the website includes a list of strategies that could be considered. This list is not exhaustive, nor is every strategy likely to be relevant for them. Every child or young person is affected differently, so it is important that their needs are assessed by a Qualified Teacher of Vision Impairment (QTVI) or a medical professional.

Professionals should work with the young person and their family to identify the strategies which match their current needs and preferences, and then create a one-page profile which gives specific practical guidance for schools and teachers to follow.

Due to the progressive nature of Stargardt’s, it is important to regularly review the needs of the child or young person.

The lists of strategies under the following categories can also be used to help inform the Education and Health Care Plan (EHCP) if the Child / Young Person has one.

Collaborating with teachers, specialists, and support services can help create an inclusive learning environment for children and young people with Stargardt's disease.