News
Bhavna’s story
In September 2015, my son Ethan was diagnosed with Stargardt’s disease when he was just seven years old; a condition we had never heard of. Being told that he was…
Toby’s story
I was diagnosed with Stargardt’s in my mid-teens. It was a big blow, especially as I had to give up my beloved ball sports as my sight deteriorated. Strangely as…
Robert’s story
I was diagnosed with Stargardt’s in the summer of 1981, shortly before my 21st birthday. On the day of diagnosis I was given the option to be registered partially sighted…
Yvonne’s story
There are several unique experiences peculiar to living with Stargardt’s disease; some very personal and others played out quite publicly. Through these experiences I learn the truths that mould and…
Katie’s story
On the 13th June 2017, I went off to a routine eye appointment that I attended every two years. I thought absolutely nothing of it as I drove there, but…
Social Meet Up November 2018
In November 2018, Stargardt’s Connected organised another pub meet up in London for the Stargardt’s community after the Sight Village Exhibition in Kensington. This was a fantastic opportunity for people…
